*Honk Honk*…. Meanwhile back at the……

Category Archives: Thoughts on Disability

“Your Autism isn’t an excuse” – This is something we tell our son from time to time, and try to teach him….  

Before you go off on me for being uncaring and insensitive….  Let me explain.  Our son, as we suspect is the case with me, is very high functioning.  In fact you might not even notice, especially at first.   When people think Autism, they often think sitting in the corner rocking or the need forba strict – unflexible – schedule. They think of the movie “rain man”.  But not all autistic or aspergers kids have those kind of obvious characteristics.

While I think it’s important for people to have a general awareness and understanding of autism, I feel that it’s equally important that my son learn proper behaviors & ettiquette.  It’s important for him to learn that certain behaviors or talking about things in an inappropriate setting is not only, well, inappropriate…but can also cause major problems.  He needs to understand, especially as he gets older, that if he has a meltdown in public people are not going to think “autism” – they’re going to be concerned for their safety (and maybe those around them).   I also think it’s important that he learn the ability of self advocation & coping skills as he goes through High School and eventually college & career. 

Advertisements

 

Honestly, Can’t say that’s much of a detterent….  A hundred dollars for using a handicapped parking spot for your own conveniences and taking away from someone who really needs it… 

Even more irritating – Seeing a vehicle with disability placard parked in hashtagged access aisle.  I mean they really SHOULD know better. 


*HeadDesk* *HeadDesk* *HeadDesk*
So, to buy test strips for hubby’s existing blood meter would cost near $100 because insurance won’t cover that particular brand. Don’t think they’ll pay for another meter….. So we would have to find out what brands they do cover and buy a meter that matches – whatever that would end up costing. Meanwhile, we have a perfectly good meter that we can’t get strips for…  
But hey, that’s what you get when you’re disabled and on “public dole” — in other words your a worthless peace of slime that should curl up & die somewhere.


Let me see….  Did I even share virtual coffee with you all last week?…. Hmmm, it appears I did not.  Well pull up a seat and I’ll tell you thehappenings here.   I’ve still got a single cup brew and a choice of a blend of regulat dark coffee (Sumatra & French Roast), and some Super Dark.  

So last week, on wednesday, the hubby had a colonoscopy.  The prep actually started on monday evening with the taking of 2 ducolax tablets and, a little later that same evening, the drinking of a 10oz bottle of magnesium citrate.  Starting at the time im which the ducolax was taken he was on a liquid diet until 6 hrs prior to procedure, at which point he was NPO.  The real fun began on tuesday night at which point something called “Go-Lytly” (something like that).  For the 1-1/2 hrs that it takes to drink the alotted dosage (according to instruction) plus some time after, the hubby literally sat on the pot the entire time.  This same procedure was repeated again the following morning (the day of the procedure) at about 4 am.

One thing I should mention is that the hubby has a spinal cord injury….  One of the complications there of is that when it comes to loose stools, there is little to no warning between the “urge to go” and “never mind, ‘code brown'” – thus the reason for being on the pot for 2 hours at a whack while he took the prescribed laxative (and even then there were some minor accidents).  Another issue, in relation to sitting on the pot for extended periods of time is that where most of us have a gluteus maximus we jokingly say he has a gluteus minimus, so there’s very little padding back there.  Plus holding himself upright on the toilet takes a lot of effort.

The good news is everything appears good.  No polyps, No cancers.  Looks like we’re good for ten years at which point it is recommended we do this again……. It doesn’t bear thinking about.

So what was the highlight of your week?  What happenned? How’d your week go?

Check out more Weekend Coffee Share posts hosted by Diane at Part-Time Monster 


Well the prep, for the hubby’s colonoscopy, didn’t go quite as bad as feared.  Course he did have to spend near 2 hours on the pot during the 2 times in which he was taking the main meds for cleaning out his system.  And no, I’m notexaggerating  or kidding.  But at least it’s all done….. Well, at least for another ten years.


And by “fun” let me assure you we mean that in the most sarcastic way possible…

You see, the hubby has been scheduled for a colonoscopy tomorrow. And that means cleaning out the gut.  Not exactly the pleasantest of experiences under normal circumstances, and for the hubby it definitely isn’t a “normal circumstance” – You see, where most of us would be like “gotta go (to the bathroom)” with hubby it’s more like “gotta g….never mind, went”.  Due to a spinal cord injury there is little to no warning between the feeling of needing to go and actually going, especially when it comes to diarrhea.  Last time he had such a procedure done (several years ago) there was lots of clean up involved, which ended up including a carpet cleaner (no carpet in this house so we’re good there).

The good news (if there is one) – the new system of prep is done over a day and a half, and is supposed to be gentler.


I can definitely relate to the frustration and aggravation felt in regards to the post by benzeknees – “A Professional Patient Rants“.

The sad thing is that people who do not have to go through such things often have very little (if any) understanding of the frustration and time involved in getting approved for benefits. There seems to be the (mis)conception that those who are handicapped do nothing but stare at the wall all day and have nothing, but stare at the walls. And then there is the lack of understanding of what might Physically be involved in getting places to get the benefit approval process going, or what might come up once you actually arrive…

Can you say “head….brick-wall”. There are times I think a padded room might be appropriate, but perhaps I shouldn’t say that 😛